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Stephen's Cruisin'
Is Stephen cruisin' for a cause this year? The James' are revving up their engines and cruising on by to increase awareness of Prader-Willi Syndrome (PWS). We need your support at this year's Foundation for Prader-Willi Research Canada's 5th Annual one SMALL step walkathon.
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Stephen's Hot to Cruise for Our Cause!
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Stephen's Story
Our hopes and dreams are to discover treatments for Stephen, who was born with PWS. This rare genetic syndrome causes a dysfunction in the hyothalamus area of his brain. PWS causes Stephen to live every day with insatiable hunger, difficulty regulating his emotions, sleep disturbances, scoliosis, growth and other endocrine deficiencies. Through research, the use of growth hormone therapy has been the first treatment to make an incredible difference in Stephen's quality of life. However, this does not address his excessive hunger and interest in food. At the age of 25 years old, Stephen requires all food to be locked up. He needs 24/7 care and support to prevent him from over consuming food which could lead to life threatening obesity. We desperately need to find that key research to end Stephen's hunger to enable him to reach his full potential.
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Stephen, Stacey & Tammy - Once Upon A Time
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Choose To Believe!
Choose to believe that we can eliminate the challenges of PWS through the advancement of research, so that Stephen can enjoy good health, obtain meaningful employment and live independently. Choose to believe and make dreams come true for all individuals with PWS and their families. Please donate today!
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