Our Story

Our little girl Alysa was born 8 months ago. She ended up in NICU for the first 5 weeks of her life. She could not feed on her own, she had no suck. She did not move or open her eyes. She didn't even cry. The doctors could not tell us what was wrong with her and everyday for weeks I prayed that everything was going to be OK for my little girl.

Finally, after 10 weeks, we received a diagnosis that our daughter had Prader Willi Syndrome. What did this mean? We were desperate to find some answers. Alysa will have alot of life long challenges to overcome some of which include speech and cognitive delays and an insatiable hunger that will lead to excessive eating and life-threatening obesity.

Nothing will come easy for her. Still at 8 months she cannot support her own head because she has such weak muscle tone. She has major sleep apnea and has to sleep with oxygen. She has had to wear a hip harness as she has hip dysplasia. She has therapies and specialists appointment that fill her day.


She is the sweetest little girl and she desperately needs your help.

Please sponsor me!

On August 16th we will be participating in the ONE SMALL STEP walk-a-thon. All funds raised will go toward The Foundation for Prader Willi Research Canada. Tax receipts will be issued for donations greater than $25.00.

Please sponser me by clicking on the "Make a Gift" button and if you already have we thank you from the bottom of our heart.